World Parkinson Coalition Inc.
1359 Broadway, Suite 1509
New York, NY 10018 USA
info@worldpdcongress.org
EIN# 57-1206493 WPC 2010 Limited
4B, 50 Speirs Wharf, Port Dundas
Glasgow G4 9TB, Scotland, UK
Company: SC355160
Scottish Charity: SCO40591
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Congress Program
The third edition of the WPC 2010 Provisional Program & Call for Papers is now ready for downloading in the attached pdf file or viewing below on this page.
Hard copies will not be available, but if you would like a hard copy of the second edition, you may request this from program@worldpdcongress.org.
The program listed below is the most updated version of the program.
The official language of the WPC 2010 is English. This Congress is open to citizens of ALL countries.
Day 0 - Pre-congress Courses - Tuesday, September 28, 2010
Scientific Course #1 | Healthcare Teams Course #2 | Fundamentals of PD Course #3
Day 1 - Wednesday, September 29, 2010
Causation/ Pathogenesis/ Underlying Risk Factors/ Lifetime Risks
Day 2 -
Thursday, September 30, 2010
Clinical Features and Assessment
Day 3 -
Friday, October 1, 2010
Experimental Therapeutics: How to Treat PD in the Future
Day 1 - Wednesday, September 29, 2010
Causation/ Pathogenesis/ Underlying Risk Factors/ Lifetime Risks
08:00 - 09:00 Hot Topics
09:10 - 12:30 Opening Morning Plenary Session
Genetics: Inheritance, Risk, Public Policy
Chair: John Hardy (UK)
Co-Chair: Nicholas Wood (UK)
09:10 Introduction: John Hardy (UK)
09:15 Talk: Genetics Overview
Speaker: Thomas Gasser (Germany)
09:45 Q&A
09:55 Talk: Genetic Testing
Speaker: Christine Klein (Germany)
10:25 Q&A
10:35 Break
11:00 Talk: Confidentiality, Ethics and Genetics
Speaker: Oksana Suchowersky (Canada)
11:30 Q&A
11:40 Talk: Genetics and Me: Patient Perspective
Speaker: David Iverson (US)
12:10 Q&A
13:00 - 14:00 Special Report (**Note that this course has been moved to Friday from13:30 - 14:30)
Parkinson's Care in Africa and South America: What we have learned and our plans for the future
Introduction: Gianni Pezzoli, MD
Speaker: Roberto Cilia, MD
14:30 - 15:30 Workshops
Workshop 1
Genetics and Beyond: A Q&A session with PD experts
Facilitator: Christine Klein (Germany)
Panelists: Oksana Suchowersky (Canada), David Iverson (US), TBD
Workshop 2 (Note: this workshop will run from 14:30 - 16:00)
Funding for Neuroscience Scientific Research
Facilitator: Steve Ford (UK)
Panelists: Karl Friedl (US), Story Landis (US), Christopher Kennard (UK), Marlies Dorlöchter (Germany)
Workshop 3
Brain Banks in the PD Community: How to Plan for this Donation
Co-presenters: Carol Moskowitz (US) & Kieran Breen (UK)
14:30 - 16:00 Afternoon Parallel Sessions
Parallel Session #1
Neuropathology of Parkinson's Disease
Chair: Eduardo Tolosa (Spain)
Co-Chair: Robert Burke (US)
14:30 Introduction: Eduardo Tolosa (Spain)
14:35 Talk: Clinical Neuropathologic Correlation
Speaker: Andrew Lees (UK)
14:55 Talk: Synucleinopathies, Staging and Spread of PD
Speaker: Tamas Revesz (UK)
15:15 Talk: Debate: Staging and the Braak Hypothesis
Speakers: PRO: Glenda Halliday (Australia) & CON: Dennis Dickson (US)
Parallel Session #2
Environment, Epidemiology and PD
Chair: Alberto Ascherio (US)
Co-Chair: Karen Marder (US)
14:30 Introduction: Alberto Ascherio (US)
14:35 Talk: Epidemiology of PD
Speaker: Caroline Tanner (US)
14:55 Talk: Preclinical Indicators of PD
Speaker: Webster Ross (US)
15:15 Talk: Gene and Environmental Interactions in PD
Speaker: Beate Ritz (US)
15:35 Talk: Pesticides and PD
Speaker: Timothy Greenamyre (US)
Parallel Session #3
Early Diagnosis and PD (Modalities to Monitor Disease Progression)
Chair: Ken Marek (US)
Co-Chair: Ed Kalkman (UK)
14:30 Introduction: Ken Marek (US)
14:25 Talk: DAT and Spect Imaging
Speaker: David Brooks (UK)
14:45 Talk: Olfaction
Speaker: Andrew Siderowf (UK)
15:15 Talk: New Imaging Modalities to Monitor PD
Speaker: David Vaillancourt (US)
15:35 Talk: Ultrasound
Speaker: Daniela Berg (Germany)
Parallel Session #4
Multidisciplinary and Comprehensive Care in PD
Chair: Nir Giladi (Israel)
Co-Chair: Lucianne Sawyer (UK)
14:30 Introduction: Lucianne Sawyer (UK)
14:40 Talk: Pros and Cons of Comprehensive Multidisciplinary Care
Speaker: Nir Giladi (Israel)
15:00 Talk: Emerging Models, Evaluation of Impact, and Evidence
Speaker: Ruth Hagestuen (US)
15:20 Talk: Comprehensive Care in 2020
Speaker: Bas Bloem (The Netherlands)
Parallel Session #5
Genetics: Autosomal Dominant and Complex Genetic Causes of PD
Chair: Thomas Gasser (Germany)
Co-Chair: Peter Heutink (The Netherlands)
14:30 Introduction: Peter Heutink (The Netherlands)
14:35 Talk: Alpha-Synculein
Speaker: Robert Nussbaum (US)
14:55 Talk: LRRK2
Speaker: Matt Farrer (US)
15:15 Talk: GWAS
Speaker: Andrew Singleton (US)
15:35 Talk: Gaucher Disease and Parkinsonism
Speaker: Ellen Sidransky (US)
Parallel Session #6
How Does the Global PD Community Fit Together, Where are we Headed, and Why Does it Matter?
Chair: David Burn (UK)
Co-Chair: John Silk (Australia)
14:30 Introduction: John Silk (Australia)
14:35 Talk: How Does the Global PD Community Fit Together?
Speaker: Susanna Lindvall (Sweden)
14:55 Talk: How did the WPC Succeed in Pulling the Parkinson's Community Together...and How Can We Keep This Spirit Alive?
Speaker: Robin Elliott (US)
15:15 Talk: How Current Internet and Social Networking Technologies Connect the Global PwP Community
and how to Fully Use these Technologies.
Speaker: Jean Burns (US)
15:35 Talk: Future Visions for PD Community: Challenges and Possibilities - a Perspective from Someone with Parkinson's
Speaker: Tom Isaacs (UK)
16:00 - 16:30 Break
16:30 - 17:30 Afternoon Workshops
Workshop 4
Social Work in the Care of PD
Speakers: Gladys Gonzalez-Ramos (US)
Workshop 5
Caring About the Caregiver
Speaker: Barbara Habermann (US)
Workshop 6
Innovative Funding Approaches from the Non-Profit Sector
Speaker: Katie Hood (US) and TBD
Workshop 7
Art Therapy and Parkinson's Disease
Speaker: Deborah Elkis-Abuhoff (US)
16:30 - 18:00 Afternoon Parallel Sessions
Parallel Session #7
Biomarkers
Chair: Howard Federoff (US)
Co-Chair: Kieran Breen (UK)
16:30 Introduction: Howard Federoff (US)
16:35 Talk: Alpha-Synuclein
Speaker: Michael Schlossmacher (Canada)
16:55 Talk: Genomics
Speaker: Clemens Scherzer (US)
17:15 Talk: Proteomics
Speaker: Jing Zhang (US)
17:35 Talk: Metabolomics
Speaker: Flint Beal (US)
Parallel Session #8
Pathophysiology of Dyskinesias
Chair: Anders Björklund (Sweden)
Co-Chair: Jonathan Brotchie (Canada)
16:30 Introduction: Anders Björklund (Sweden)
16:35 Talk: Neurophysiology
Speaker: Paolo Calabresi (Italy)
16:55 Talk: Molecular Insights
Speaker: Jonathan Brotchie (Canada)
17:15 Talk: Post Versus Presynaptic Plasticity
Speaker: Angela Cenci-Nilson (Sweden)
17:35 Talk: Role of Serotonin Neurons in the Development of L-DOPA-induced Dyskinesias
Speaker: Manolo Carta (Sweden)
Parallel Session #9
How to Engage your Government in Health Policy Considerations for Chronic Disease
Chair: Steve Ford (UK)
Co-Chair: Greg Wasson (US)
16:30 Introduction: Greg Wasson (US)
16:35 Talk: Burden of Chronic Disease and How to get your Government to Care
Speaker: David Colin-Thome (UK)
16:55 Talk: Case Study: Parkinson Society Canada and the Development of Neurological Health Charities Canada (NHCC) as a National Advocacy Strategy
Speaker: Shannon MacDonald (Canada)
17:15 Talk: Effecting Change through Grassroots Advocacy
Speaker: Amy Rick (US)
17:35 Panel Discussion and Q&A
Parallel Session #10
Non-Autonomous Cell Death In PD
Chair: Marie-Françoise Chesselet (US)
Co-Chair: Serge Przedborski (US)
16:30 Introduction: Marie-Françoise Chesselet (US)
16:35 Talk: Role of Microglial Cells in Parkinson's Disease
Speaker: David Standaert (US)
16:55 Talk: Role of Lymphocytes in PD
Speaker: Etienne Hirsch (France)
17:15 Talk: Molecular Pathways of Non-autonomous Cell Death in PD
Speaker: Malu Tansey (US)
17:35 Talk: Vaccination for PD
Speaker: Howard Gendelman (US)
Parallel Session #11
Treatment of Hyperkinesias Associated with PD
Chair: Eduardo Tolosa (Spain)
Co-Chair: John Nutt (US)
16:30 Introduction: Eduardo Tolosa (Spain)
16:35 Talk: Medical Treatment of Levodopa-related Dyskinesias
Speaker: François Vingerhoets (Switzerland)
16:55 Talk: Surgical Treatment of Levodopa-related Dyskinesias
Speaker: Michael Okun (US)
17:15 Talk: Treatment of Blepharospasm and Cervical Dystonia
Speaker: Joseph Jankovic (US)
17:35 Talk: Bench to Bedside: Discussion of Past & Future Treatments
Speaker: Eldad Melamed (Israel)
Day 2 - Thursday, September 30, 2010
Clinical Features and Assessment
08:00 – 09:00 Early Morning Session
Response Fluctuations in Parkinson's Disease: Why Patients are Crucial for Optimal Management
Speakers: Bastiaan R. Bloem (Netherlands), Fabrizio Stocchi (Italy), Joy Reid (UK)
NOTE: This early morning session, open to all delegates, is supported through an unrestricted education grant from Orion Pharma and Novartis Pharma AG. Program designed by WPC leadership.
08:00 - 09:00 Hot Topics
09:10 - 11:10 Opening Morning Plenary Session
Parkinson's Disease: How does it unravel?
Chair: Donald Grosset (UK)
Co-Chair: Stanley Fahn (US)
09:10 Introduction: Donald Grosset (UK)
09:15 Talk: Parkinson's Disease and Me (Patient Perspective)
Speaker: Tom Isaacs (UK)
09:35 Q&A
09:40 Talk: Premotor PD. Can We Diagnose It?
Speaker: Anthony Lang (Canada)
10:00 Q&A
10:10 Talk: Nature and Spread of Parkinson's Disease
Speaker: Glenda Halliday (Australia)
10:30 Q&A
10:40 Talk: Nuts and Bolts of Parkinson's Disease Progression
Speaker: J. William Langston (US)
11:00 Q&A
11:10 Break
11:45 - 13:15 Special Symposium
Accelerating Access to Care in Parkinson's Disease: Collaboration is Key
11:45 Introduction: Mary Baker, MBE European Federation of Neurological Associations
12:00 When Will the System Give Me the Treatment I Need?
Panelists:
-Alastair Benbow, European Brain Council
-Bastiaan Bloem, Consultant Neurologist, The Netherlands
-John Bowis, OBE, Former UK MP, Health Minister and MEP
-Tom Isaacs , European Parkinson's Disease Association J
-Jean Mossman, European Federation of Neurological Associations
-Ken Paterson, Scottish Medicines Commission
-Representative of the European Medicines Agency (TBC)
12:30 How Do We Work Together to Improve Access to Best Care?
Facilitator: Mary Baker (UK)
Panel: Discussion & Questions
13:00 Collaboration: From Discussion to Future Reality
Speaker: Mary Baker (UK)
In this session, open to all delegates, the panel will highlight that access to the best care for Parkinson's disease is constrained, and there are many hurdles that exist on the road to making a new and effective medicine available. Representing the various stakeholders involved in the care of the person with PD, the panel will engage in a constructive dialogue around these challenges. The session aims to identify how, by collaboration across professional boundaries, decision makers can work towards a shared vision to improve access to medication for PD patients now and in the future.
This session has been organized by the European Federation of Neurological Associations and the European Parkinson's Disease Association. It has been reviewed and approved by the WPC Program Committee.
This session is supported by an unrestricted grant from Abbott.
13:30 to 14:30 Workshops
Workshop 1
Understanding PD Symptoms and Beyond: Q&A with PD Experts
Facilitator: Donald Grosset (UK)
Panelists: Ken Marek (UK), Glenda Halliday (Australia), J. William Langston (US)
Workshop 2
Dance and Parkinson's Disease
Speaker: Olie Westheimer (US)
Workshop 3
Exercise & PD: How to Make it Work for You
Speakers: Davis Phinney (US) & Giselle Petzinger (US)
Workshop 4
Complementary Drug Options for PD
Speakers: Melanie Brandabur (US) & Piu Chan (China)
13:30 to 15:00 Afternoon Parallel Sessions
Parallel Session #1
PD and Cognition
Chair: Karen Marder (US)
Co-Chair: Alex Tröster (US)
13:30 Introduction: The Spectrum of Everyday Cognitive
Dysfunction and Neuropsychological in Parkinson's Disease
Speaker: Alex Tröster (US)
13:35 Talk: Cognitive Dysfunction in PD
Speaker: Dag Aarsland (Norway)
13:55 Talk: Executive Dysfunction in PD: Experimental
Evidence and Clinical Implications
Speaker: Trevor Robbins (UK)
14:15 Talk: PDD/ PD Dementia
Speaker: David Burn (UK)
14:35 Talk: Depression and Cognitive Dysfunction in PD: What is the Relationship?
Speaker: Laura Marsh (US)
Parallel Session #2
Access to PD Care
Chair: Caroline Tanner (US)
Co-Chair: Alessandro Di Rocco (US)
13:30 Overview talk: International Perspective on Access to Care
Speaker: Alessandro Di Rocco (US)
13:40
Panelist: Uday Muthane (India)
Panelist: Njideka Okubadejo (Nigeria)
Panelist: J. Guitierrez (Cuba)
Panelist: Nabila Dahodwala (US)
Panelist: Piu Chan (China)
14:30 - 15:00 Q&A & Panel Discussion
Parallel Session #3
Comprehensive Care: The Role of the Nurse in the Management of PD
Chair: Ruth Hagestuen (US)
Co-Chair: Richard Glasspool (UK)
13:30 Introduction: History of the Role of the PD Nurse
Speaker: Richard Glasspool (UK)
13:45 Talk: Patient and Family/Caregiver Health Counselling and PD Education
Speaker: Julie Carter (US)
14:00 Talk: Role 1: Direct Patient Care/Technical Expertise; Role 2: Collaboration and Facilitation of Comprehensive, Multidisciplinary Care (Hospital-based vs. Clinic-based)
Speaker: Lidy Tinselboer (The Netherlands)
14:15 Talk: Health Systems Coordination and Evaluation of Outcomes
Speaker: Robert Iansek (Australia)
14:30 Talk: Current Evidence of PD Nursing: Where do We Go from Here?
Speaker: Peter Hagell (Sweden)
14:45 Panel for Q&A
Parallel Session #4
Genetics: Autosomal Recessive PD
Chair: Nobutaka Hattori (Japan)
Co-Chair: John Hardy (UK)
13:30 Introduction: John Hardy (UK)
13:35 Talk: Parkin
Speaker: Yoshikuni Mizuno (Japan)
13:55 Talk: PINK1
Speaker: Enza Maria Valente (Italy)
14:15 Talk: DJ-1
Speaker: Vincenzo Bonifati (The Netherlands)
14:35 Talk: Autosomal Recessive PD and Dystonia
Speaker: Coro Paisan-Ruiz (UK)
Parallel Session #5
Taking Charge of Your Parkinson's and Making a Difference in your Community
Chair: Bryn Williams (UK)
Co-chair: Liz Wolstenholme (UK)
13:30 Introduction: Liz Wolstenholme (UK)
13:40 Talk: Using your Strengths to Make a Difference in your Parkinson's Community
Speaker: Jean Burns (US)
13:50 Talk: Being Your Own Best Advocate: Things You Can do to take Charge of Your PD
Speaker: Ann Keilthy (Ireland)
14:00 Talk: Start Small but Think Big: Changes You can Make in Your Own Community
Speaker: Fulvio Capitanio (Spain)
14:10 Talk: Advocacy as Empowerment
Speaker: Greg Wasson (US)
14:20 Panel: Q&A
15:00 - 15:30 Break
15:30 - 16:30 Afternoon Workshops
Workshop 5
Speech, Swallowing and Parkinsonism
Speakers: Lorraine Ramig (US) & Yael Manor (Israel)
Workshop 6
PD, Cognition & Dementia
Speaker: Murat Emre (Turkey) & Alex Tröster (US)
Workshop 7
What does Physiotherapy Offer for People with Parkinson's
Disease?
Speaker: Meg Morris (Australia)
15:30 - 17:00 Afternoon Parallel Sessions
Parallel Session #6
DBS and Parkinson's: What is it? How does it work? Who does it help?
Chair: Susan Heath (US)
Co-Chair: Michael Okun (US)
15:30 Introduction:
Speaker: Susan Heath (US)
15:35 DBS: What is it, How Does it Work and Who is a Good Candidate?
Speaker: Alim Benabid (France)
16:00 Panel of Implanted Patients: DBS from the Patient Perspective
Speakers: Davis Phinney (US) & Ann Keilthy (Ireland)
16:20 Impact of DBS of the STN on Cognition, Mood and Psychosocial Adjustment
Speaker: Marjan Jahanshahi (UK)
16:40 Q&A Panel
Parallel Session #7
PD Depression, Anxiety and Psychosis
Chair: Laura Marsh (US)
Co-Chair: Daniel Weintraub (US)
15:30 Introduction: Laura Marsh (US)
15:35 Talk: Depression/Apathy
Speaker: Paolo Barone (Italy)
15:55 Talk: Anxiety
Speaker: Albert Leentjens (The Netherlands)
16:15 Talk: Psychosis
Speaker: Susan Fox (Canada)
16:35 Talk: Impulse Control Disorders & DA Dysregulation
Speaker: Valerie Voon (UK)
Parallel Session #8
LRRK2
Chair: Matt Farrer (US)
Co-Chair: Thomas Gasser (Germany)
15:30 Introduction:
Speaker: Thomas Gasser (Germany)
15:35 Talk: Biology and Protein Biochemistry
Speaker: Mark Cookson (US)
15:55 Talk: LRRK2 Animal Models
Speaker: Jie Shen (US)
16:15 Talk: LRRK2 Therapeutic Opportunities
Speaker: Valina Dawson (US)
16:35 T alk: LRRK2 PD Phenotypes and Biomarkers
Speaker: Susan Bressman (US)
16:55 Q&A
Parallel Session #9
The Role of the Mitochondria in PD
Chair: Anthony Schapira (UK)
Co-Chair: Nicholas Wood (UK)
15:30 Introduction: Anthony Schapira (UK)
15:35 Talk: PINK1 Biology
Speaker: Ming Guo (US)
15:55 Talk: Oxidative Stress and Mitochondrial Dysfunction (Intoxications Models)
Speaker: Serge Przedborski (US)
16:15 Talk: Parkin Biology
Speaker: Ted Dawson (US)
16:35 Talk: Calcium Homeostasis and the Mitochondria
Speaker: James Surmeier (US)
Parallel Session #10
Non-Motor Symptoms: Sleep, Pain, and Autonomic Dysfunction
Chair: Lisa Shulman (US)
Co-Chair: Joy Reid (UK)
15:30 Introduction: Lisa Shulman (US)
15:35 Talk: RBD
Speaker: Cynthia Comella (US)
15:55 Talk: Somnolence - EDS
Speaker: Ray Chaudhuri (UK)
16:15 Talk: Pain
Speaker: Andrew Evans (Australia)
16:35 Talk: Autonomic Disturbances
Speaker: Ronald Pfeiffer (US)
Parallel Session #11
Care Delivery from a Family Perspective
Chair: Peter Hagell (Sweden)
Co-Chair: Knut-Johan Onarheim (Norway)
15:30 Introduction: Knut-Johan Onarheim (Norway)
15:35 Talk: Family needs for Young Onset vs Later Onset
Speaker: Julie Carter (US)
15:55 Talk: Nurturing Family Relationships through Crisis and Change from the time of Diagnosis and Onward
Speaker: Jennie Posen (Israel)
16:15 Talk: What Does the Care Partner Need to Know: Practical Advice
Speaker: Barbara Habermann (US)
16:35 Talk: Symptom Management to Prevent Onset of Disability
Speaker: Margarita Makoutonina (Australia)
Day 3 - Friday, October 1, 2010
Experimental Therapeutics: How to Treat PD in the Future
08:00 - 09:00 Hot Topics
09:10 - 10:45 Opening Morning Plenary Session
Experimental Therapeutics: How to Treat PD in the Future
Chair: Patrik Brundin (Sweden)
Co-Chair: Werner Poewe (Austria)
9:10 Introduction: Werner Poewe (Austria)
9:15 Talk: Treatment of Unmet Needs in Parkinson's Disease
Speaker: Ira Shoulson (US)
9:35 Q&A
9:45 Talk: Neuroprotection:
Speaker: C. Warren Olanow (US)
10:05 Q&A
10:15 Talk: Gene and Cell Based Therapies
Speaker: Roger Barker (UK)
10:35 Q&A
11:15 - 12:15 Morning Workshops
Workshop 1
Therapeutic Options and Beyond: Q&A with PD Experts
Facilitator: Ira Shoulson (US)
Panelists: Patrik Brundin (Sweden), Roger Barker (UK)
Workshop 2
When to Start, What to Start
Speaker: Donald Grosset (UK)
Workshop 3
How to Manage Freezing and Falling
Speaker: Samyra Keus (The Netherlands)
11:15 - 12:45 Morning Parallel Sessions
Parallel Session #1
Non-Drug Approaches to Treatments for Parkinson's Disease
Chair: Steve Ford (UK)
Co-Chair: Bastiaan Bloem (The Netherlands)
11:15 Introduction: Bastiaan Bloem (The Netherlands)
11:20 Talk: Exercise and PD
Speaker: Giselle Petzinger (US)
11:40 Talk: Physical Therapy and PD: Evidence-based
Assessment of PT
Speaker: Lynn Rochester (UK)
12:00 Talk: Speech Therapy and PD: Evidence-based
assessment of speech therapy
Speaker: Christy Ludlow (US)
12:20 Talk: Nonpharmacological, Cognitive and Psychological Therapies
Speaker: Karen Anderson (US)
Parallel Session #2
Treatment of Advanced Parkinson's Disease: Focus on Dyskinesias
Chair: C. Warren Olanow (US)
Co-Chair: Susan Fox (Canada)
11:15 Introduction: Susan Fox (Canada)
11:20 Talk : Treatment of Dyskinesias and Complex Motor Fluctuations
Speaker: Wolfgang Oertel (Germany)
11:40 Talk: Different CDS Delivery Systems - Indications and Contraindications / Challenges and Benefits of CDS in the Long-term Treatment of Parkinson's Disease
Speaker: Erik Wolters (The Netherlands)
12:00 Talk: Scientific Rationale of Continuous Dopaminergic Stimulation in Advanced PD
Speaker: Maral Mouradian (US)
12:20 Talk: Bench to Bedside Talk - Novel Anti-dyskinetic Treatments being Tested in the Clinic
Speaker: Olivier Rascol (France)
Parallel Session #3
What You Should Know Before Participating in Clinical Trials for PD
Chair: John Zajicheck (UK)
Co-chair: Jean Burns (US)
11:15 Introduction: John Zajicheck (UK)
11:20 Talk: Why People Should Consider Joining a Clinical
Trial: Trials, Tribulations and Triumphs
Speaker: Tom Isaacs (UK)
11:40 Talk: What You Need to Ask Before Signing up for a
Trial or Observational Study
Speaker: Greg Wasson (US)
12:00 Talk: Outcome Measures and What These Mean to
Patients
Speaker: Peter Hagell (Sweden)
12:20 Talk: Resources and How to Get Involved
Speaker: Robin Elliott (US)
Parallel Session #4
Neuroprotection
Chair: Stanley Fahn (US)
Co-Chair: Etienne Hirsch (France)
11:15 Introduction: Extent of Pathology and Challenges to Neuroprotective Therapy with a Disease that is Multisystem Speaker: Stanley Fahn (US)
11:20 Talk: Utility of Different Animal Model Approaches
Speaker: J. William Langston (US)
11:40 Talk: Clinical Criteria to Follow Neuroprotection
Speaker: Karl Kieburtz (US)
12:00 Talk: Effective Delivery of the Neuroprotectant to the Brain
Speaker: Patrick Aebischer (Switzerland)
12:20 Talk: Different Diseases at Different Stages Require
Different Neuroprotective Approaches
Speaker: Bernard Ravina (US)
Parallel Session #5
Non-motor Symptoms
Chair: Werner Poewe (Austria)
Co-Chair: Ron Pfeiffer (US)
11:15 Introduction: Werner Poewe (Austria)
11:20 Talk: Cardiovascular Features PD
Speaker: David S. Goldstein (US)
11:40 Talk: Sexual Dysfunction and Bladder Issues with PD
Speaker: Fabrizio Stocchi (Italy)
12:00 Talk: Involvement of the Gastrointestinal Tract
Speaker: James Greene (US)
12:20 Talk: Treatment of Non Motor Features of PD
Speaker: Anthony Schapira (UK)
Parallel Session #6
Gene and Cellular Therapy: Regenerative Medicine
Chair: Kieran Breen (UK)
Co-Chair: Michael Kaplitt (US)
11:15 Introduction: Michael Kaplitt (US)
11:20 Talk: DA Differentiation/Guidance Response of Midbrain Dopaminergic Neurons in Development and Disease
Speaker: Ronald McKay (US)
11:40 Talk: Cellular Therapy (ES Cells)
Speaker: Ole Isacson (US)
12:00 Talk: Cellular Therapy (iPS Cells)
Speaker: Lorenz Studer (US)
12:20 Talk: Gene Therapy
Speaker: Deniz Kirik (Sweden)
12:45 – 14:15 Special Session
‘Tips and Tricks’ for Parkinson's
Facilitator: Mariella Graziano (Luxembourg)
In this special session, open to everyone, participants will learn about tips and tricks, to help them overcome daily obstacles, such as how to start walking when their feet are glued to the floor or how they can get out of a car easily. Many people with Parkinson's have discovered and developed strategies that help them maintain movement and improve mobility to overcome their personal obstacles. This session, hosted by the European Parkinson's Disease Association (EPDA), will encourage participants to view strategies that have already been developed and will also enable them to share their own tips and tricks with others.
Willing participants will have their tips and tricks captured on video (those who agree to sign a waiver provided onsite) which will be added to the EPDA Coping Strategies - Tips and Tricks website.
13:30 - 14:30 Special Report
NINDS Common Data Element Project
Facilitators: Karl Kieburtz (US) & Caroline Tanner (US)
Introduction: Wendy Galpern (US)
Panelists: TBA
In this special report, open to all delegates, speakers will discuss the Parkinson's disease Common Date Elements (CDEs) organized by the National Instituute of Neurological Disorders and Stroke at the NIH. The CDEs were developed based on the recommendations of the Parkinson's disease (PD) CDE Working Group (WG), a committee of over fifty experts from nine different countries who are divided into twelve Subgroups/Specialty areas. The Subgroups discussed the elements commonly collected in current PD clinical studies, in an effort to standardize the collection of the most useful elements an ultimately improve clinical trials globally for the Parkinson's community.
13:00 - 14:00 Special Report (**Note that this course was originally scheduled for Wed. from13:00 - 14:00)
Parkinson's Care in Africa and South America: What We Have Learned and Our Plans for the Future
Introduction: Gianni Pezzoli, MD
Speaker: Roberto Cilia, MD
In this special report, open to all delegates, speakers will discuss and highlight the ongoing efforts of the World Parkinson Disease Association to better understand the challenges of people living with Parkinson's in resource poor areas in Africa and South America. They will also discuss ongoing programs and programs being considered to offer better health care to these regions and how the global Parkinson's community can get involved.
14:45 - 15:45 Afternoon Workshops
Workshop 4
Troubleshooting Common Problems in DBS Therapy
Speaker: Susan Heath (US)
Workshop 5
Music & Parkinson's Disease
Speakers: Constance Tomaino (US) & Grace Griffith (US)
Workshop 6
Nutrition and Dopamine Metabolism in Parkinson's Disease
Speaker: Lucille Leader (UK)
Workshop 7
Caring for a Patient with Advanced PD
Speaker: Lisette Bunting-Perry (US)
14:45 - 16:15 Afternoon Parallel Sessions
Parallel Session #7
Alpha-Synuclein
Chair: Robert Nussbaum (US)
Co-Chair: Pia Chan (China)
14:45 Introduction: Robert Nussbaum (US)
14:50 Talk: Alpha-Synuclein Biology and Biochemistry
Speaker: Virginia Lee (US)
15:10 Talk: Alpha-Synuclein Normal Function
Speaker: Robert Edwards (US)
15:30 Talk: Alpha-Synuclein Animal Models
Speaker: Patrick Aebischer (Switzerland)
15:50 Talk: Alpha-Synuclein Therapeutic Opportunities
Speaker: John Trojanowski (US)
Parallel Session #8
Physical Therapy and PD
Chair: Mariella Graziano (Luxembourg)
Co-Chair: Samyra Keus (The Netherlands)
14:45 Introduction: Samyra Keus (The Netherlands)
14:50 Talk: Freezing of Gait: What Does Physiotherapy Have to Offer?
Speaker: Alice Nieuwboer (Belgium)
15:10 Talk: Preventing Falls and Improving Mobility on PD
Speaker: Meg Morris (Australia)
15:30 Talk: The Effect of Dual Tasking on Gait in PD
Speaker: Lynn Rochester (UK)
15:50 Talk: Professional Evolution and Scientific Validation of Physical Therapy
Speaker: Bas Bloem (The Netherlands)
Parallel Session #9
Gene Therapy: Regenerative Medicine
Chair: Karl Friedl (US)
Co-Chair: Deniz Kirik (Sweden)
14:45 Introduction: Deniz Kirik (Sweden)
14:50 Talk: Overview of Gene Therapy
Speaker: Krys Bankiewicz (US)
15:10 Talk: Neuroprotection by Trophic Factors
Speaker: Jeffrey Kordower (US)
15:30 Talk: Continuous L-DOPA/Dopamine Delivery
Speaker: Stephane Palfi (France)
15:50 Talk: GAD Enzyme Therapy for Silencing of the Subthalamic Nucleus
Speaker: Michael Kaplitt (US)
Parallel Session #10
Maintaining Speech in PD
Chair: Cynthia Fox (US)
Co-Chair: Yael Manor (Israel)
14:45 Introduction: Cynthia Fox (US)
14:50 Talk: Factors Affecting Maintenance of Speech in the
Community
Speaker: Nicholas Miller (UK)
15:10 Talk: Beyond Speech Treatment to Speech Exercise and
Speech Imaging
Speaker: Lorraine Ramig (US)
15:30 Talk: Innovations in Technology to Facilitate
Maintenance of Speech
Speaker: Deborah Theodoros (Australia)
15:50 Talk: Maintaining Speech Post-DBS
Speaker: Elina Tripoliti (UK)
Parallel Session #11
Challenges in Design and Conduct for Clinical Trials for PD
Chair: Ira Shoulson (US)
Co-Chair: Cristina Sampaio (Portugal)
14:45 Introduction: Cristina Sampaio (Portugal)
14:50 Talk: Increasing Public Awareness about Clinical Trials
Speaker: Robin Elliott (US)
15:10 Talk: Clinical Trial Designs
Speaker: Olivier Rascol (France)
15:30 Talk: Participation in Clinical Trials
Speaker: David Burn (UK)
15:50 Talk: Regulatory Perspective (FDA/EU/Other)
Speaker: Alasdair Breckenridge (UK)
17:00 PD Game Night
The Brain Game - establishing once and for all who knows the most about the World, the Parkinson's, the Congress and
everything else for that matter. Split into seven categories
representing all aspects of Parkinson's, the Brain Game sees the PD community go head-to-head to decipher who are the real experts. The winners will go on to lift the much coveted ‘Basal Ganglia Bucket’ (otherwise known as “The Basil”) and will be given the opportunity to donate their superior brains immediately afterwards! Teams comprising PD Specialists, Healthcare Professionals, Administrators (including students), Pharma, Patient Advocates and families, Researchers and the Media will do battle in this thrilling finale to the Congress, hosted by author and comedian Tony Hawks and The Cure Parkinson's Trust. Places are limited so book your seat when you register. Read about Tony Hawks!